Stories of Hope

The comedy writer and performer, who has Stargardt disease, has become an unexpected source of support for others grappling with vision loss.
The story of how the Argus II retinal prosthesis—recently approved by the FDA—shed light on one Englishman’s life after decades of darkness.
How Meghan Downing, an 11-year-old with Stargardt disease, helps support the Foundation while continuing to surf, swim and, yes, play dodge ball.
Their two children were born legally blind. But Chris and Doug Day are confident that, with the Foundation’s support, their kids will lead fulfilling lives. That’s why they’ve joined thousands of families across the country doing their part to raise aware
Diagnosed last year with Stargardt disease, Gracie Nash is as active as any 7-year-old. Her parents, meanwhile, are encouraged by the great research strides supported by the Foundation.
One Foundation benefactor, who’s also affected, knows the value of planning ahead.
Affected by Usher syndrome, Rachel Weeks has both limited hearing and sight. But that doesn’t keep her from running, swimming and biking competitively – again and again.
When Judy Hauger and her husband, Craig, moved from their long-time home in Sioux Falls, South Dakota to Pebble Creek, an active adult community outside of Phoenix, Arizona, they were looking forward to warmer weather and all the perks — sports teams, soc
Brooke James has had more than a glimpse of what it means to be blind in certain parts of the world. And she can assure you, it’s scary.
The parents of young children affected by retinal diseases walk a fine line – between making the best of a trying situation and preparing for the worst. “He knows that he has it,” Serena Jenkins says of her 8-year-old son, Aidan, who was diagnosed with re

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