Stories of Hope

One Foundation benefactor, who’s also affected, knows the value of planning ahead.
Diagnosed last year with Stargardt disease, Gracie Nash is as active as any 7-year-old. Her parents, meanwhile, are encouraged by the great research strides supported by the Foundation.
Affected by Usher syndrome, Rachel Weeks has both limited hearing and sight. But that doesn’t keep her from running, swimming and biking competitively – again and again.
Brooke James has had more than a glimpse of what it means to be blind in certain parts of the world. And she can assure you, it’s scary.
When Judy Hauger and her husband, Craig, moved from their long-time home in Sioux Falls, South Dakota to Pebble Creek, an active adult community outside of Phoenix, Arizona, they were looking forward to warmer weather and all the perks — sports teams, soc
The parents of young children affected by retinal diseases walk a fine line – between making the best of a trying situation and preparing for the worst. “He knows that he has it,” Serena Jenkins says of her 8-year-old son, Aidan, who was diagnosed with re
When it comes to describing Eric Fulton, “gregarious” is a more-than-appropriate adjective for the husband and father of two who, fittingly, is also communications manager at the Bethesda-based Clark Construction Group. “It comes naturally to me,” he says