Press Releases

Wednesday, January 3, 2018

Jason Morris, Chief Administrative Officer at TKC Holdings, has been appointed to the Foundation Fighting Blindness Board of Directors, the Foundation announced today.

Tuesday, December 19, 2017

Today’s U.S. Food and Drug Administration (FDA) approval of voretigene neparvovec, to be marketed as LUXTURNA, will be life-changing for patients with vision loss due to mutations in the RPE65 gene and a watershed moment for the inherited retinal disease field, says the Foundation Fighting Blindness.

Tuesday, November 28, 2017

The Foundation Fighting Blindness (FFB), the world’s leading private funder of research on treatments and cures for vision-robbing inherited retinal diseases, strongly opposes recent U.S. Senate and House of Representatives actions which would slow or stop research on treatments for Americans impacted by rare diseases.

Tuesday, October 17, 2017

The Foundation Fighting Blindness (FFB) announced that it has selected Benjamin Yerxa, a biotechnology and drug development executive, as its Chief Executive Officer, effective immediately.

Thursday, October 12, 2017

Approval of the gene therapy will allow treatment for people with vision-loss due to RPE65 mutations and will help advance other investigational studies with potential to help millions, FFB tells the Committee.

Thursday, September 7, 2017

The Foundation Fighting Blindness (FFB), the world’s leading private funder of research on preventions, treatments and cures for vision loss due to inherited retinal diseases is accepting applications for its next round of funding grants to be awarded May 2018.

Thursday, August 17, 2017

The first patient has been enrolled in a four-year natural history study of people with mutations in the USH2A gene.

Tuesday, August 1, 2017

The National Center for Excellence in Fighting Blindness, a Gund-Harrington Initiative, has opened its fourth annual Gund-Harrington Scholar Award competition to support innovative research efforts that seek to prevent, treat or cure blindness.

Wednesday, July 12, 2017

A newly established French company, SparingVision, has won the 2017 i-Lab Grand Prize recognizing new and innovative companies. The i-Lab competition is organized by the French Ministry of Higher Education, Research and Innovation and Bpifrance (BPI).

Tuesday, June 6, 2017

The Foundation Fighting Blindness (FFB) today announced $6 million in new research funding across a spectrum of potential preventions, treatments and cures for inherited retinal diseases including retinitis pigmentosa and macular degeneration.

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